Singer Lee HONG-KI (FTISLAND), who has suffered from boils all his life, so much so that he named his YouTube channel ``HONG-KI Jeong-ki,'' has announced that the disease he suffers from is ``hidradenitis suppurativa.''
After learning about this fact, he felt hopeful that the frustrating part could be resolved and that the disease could be properly managed, and he conveyed a message of hope to patients suffering from the same disease.
The disease Lee HONG-KI is suffering from is a rare chronic inflammatory skin disease called ``Koreanitis suppurativa''. Painful inflammation mainly in areas where the skin touches, such as the buttocks, groin, and armpits.
It is an extremely painful disease in which lesions such as sexual nodules, foul-smelling abscesses, and fistulas appear repeatedly. These symptoms can cause patients to experience social stigma and isolation, depression, and anxiety, which can affect the patient.
It also has a significant impact on the quality of life. It is estimated that there are approximately 10,000 patients in South Korea. In particular, awareness of the disease is low, and patients are often left undiagnosed due to their shame and other factors.
, it is often misdiagnosed as other skin diseases such as acne or hair follicle infections. On the 18th, HONG-KI announced on YouTube ``Shining Light on Hidradenitis Suppurativa'', which is operated by Novartis Korea to improve disease awareness.
(Shine a light on HS)'' and shared his experiences to date, including delays in diagnosis due to low awareness of the disease, and physical and emotional complaints experienced by patients.
In particular, in the video, HONG-KI reveals that his illness, which he spent a long time thinking was a boil and underwent surgery whenever the symptoms got worse, was actually ``hidradenitis suppurativa.''
He revealed that he will soon find out the details. He encouraged other patients with similar symptoms to have the courage to see a dermatologist before it's too late. Also, no matter how difficult the situation is,
He also conveyed a message of support, saying that no matter what happens, you should not give up because there is hope and you can see the light at the end of the tunnel you are currently walking through.
HONG-KI said, ``On the air, he talked about the pain he experienced due to boils many times, and his YouTube channel name
Nowadays, it's easier to reveal the symptoms to the point where people say, ``Hong-ki Jeonggi,'' but it actually took me a long time to talk about it.''He then learned the name of the disease, ``hidradenitis suppurativa.'' Especially
This gave me hope that many of the things I had been vague about could be resolved, and that this disease could be better managed. If you know anyone who suffers from similar symptoms to me, please feel free to contact me.
I want him to receive a diagnosis and treatment." Yoo Byung-jae, CEO and CEO of Novartis Korea, said, ``Through this campaign, more people will be able to learn about the disease called Korean inflammation suppurativa.''
I hope that by learning more about the disease, hidden patients will have the courage to come out into the world.'' Hidradenitis suppurativa is poorly recognized and is often left undiagnosed without an accurate diagnosis.
I hear that there are many patients with this condition. We will continue to make continuous efforts to ensure that South Korean patients with pyogenic sinusitis receive treatment in a better environment and improve their quality of life."
